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Sunday, 26 September 2010

Rugby

And so it goes on. Tracey should be about as low as it gets and she looks like she may be coming out of the other side of this chemo session. Still a bit too early to tell if she will get through this bit without infection.

Adam has a cold so has been put in Tinsley isolation. That is not quite as bad as it sounds as it involves telly and Doritos in bed followed by a day off school. Granny is still here pandering to the patients every need and keeping her pecker up. Olivia decided to spend most of the day home which was"boring, all they do is sit down and talk or watch telly". She has now gone down to the pub with her friends. There is a threat of another piercing from the girl, this is being resisted at the highest level, but she is 18........

Vaughan and I went on a magical mystery tour today. It started with a trip to North Dorset Rugby club for an under 16 match this morning, the ground is near Gillingham. Very nice place, Very big defeat (74-7). We went with the bare 15, had 4 injuries and had to borrow some of their players just to get to the end. Still nice cup of tea and bacon roll. Vaughan now sports just the start of a black eye, I hope the girls notice it, it's nice having a warrior in the family.

We raced off after the match to catch the Cornish Pirates vs Bristol at the Memorial stadium. Bit of a drive and a bit of a rush. We arrived and parked in plenty of time and enjoyed the match. Sadly a 21-7 defeat for the boys. While we were there a 2mtre section of metal was knocked off the terraces by the ball and nearly landed on the people next to us. Luckily the club were able to get the accident book out so that won't be a problem in the future. Finally we drove home in time for a bumper Lamb Sunday roast cooked by Granny. We happily stood in the terraces, Vaughan wearing a Pirates shirt right in the middle of the Bristol fans, I shouted and abused the Bristol players and the ref. All was taken good heartedly. And that was today.

Yesterday Adam was at a friends house for most of the day and I spent 2 hour giving Livi a driving lesson. It's not a real lesson. I sit in the car while she drives around, doing the occasional manoeuvre. Fun and frightening all at the same time.

Of course the big news of the weekend is the election of Ed Miliband as Labour leader and the next Prime Minister. Vive la revolution! Come on Red Ed!

Thinking about all that is happening at the moment I have become a now sort of person. I never was a planner, I never thought through the consequences of much that I did and now I do it even less. I hope this will continue once my old dear is better and firing on all cylinders

Speaking of which I don't think we thank you all enough for the comments and support, so thank you. xxx

Chris x

Tuesday, 21 September 2010

4 days in

You might have guessed from the lack of Tracey blog that she has been feeling less than well for the last few days. The extra anti-sickness pills have stopped her climbing up the wall but she still has not been well. She is back on the upslope of recovery and I expect her to start up her blog again soon. I shall leave the rest to her.

Meanwhile I have been dragged out of the house by my boys over the weekend. Firstly Adam took me out on a bike ride, this took me down to Semington, along the canal to Bowerhill and back home. Any bike ride deserves a good cake and this was no different.

Blackcurrant and cream
After the cake we came to a spot on the canal where I took a picture of Adam and recreated it. We tried to pose many of the things we had last time in the same position as before. Unfortunately I couldn't get up high enough to take the picture at the same angle. See what you think about the changes 3 years can make.



 
2010
 
2007












Still a handsome chap I'm sure you will agree.

Also it was Vaughan's first rugby match of the season on Sunday at Bradford on Avon. Lets just say they didn't win but at least it was a chance for me to talk to the parents again. There is nothing quite like a cup of tea, a bacon roll and a chin wag to start a Sunday morning. This started with a very friendly mixed training session with the lads from both sides training together and ended with the occasional fight breaking out on the rugby field. It was the first time the lads had to use lifting in the lineout and Vaughan was playing at prop. Great fun.

Vaughan is in there somewhere.

Bye Bye Chris x

Sunday, 19 September 2010

Chemo 2, the sequel

Well Friday was the day, the return to the chemo suite. Same chemo again plus 2 new drugs to help with sickness and white blood cell count. As usual when Tracey has recovered enough she will give you a full run down of the day. From my viewpoint, fat, mid 50's, fairly healthy, the day was better than the first time. We knew what to expect, we had our books and even managed a laugh with the nurses. The first chemo chemical is almost exactly the same colour as Iron Bru which had our two Scottish nurses waxing lyrical about all the bright orange things they eat and drink north of the border.

I had to do a bit of running around this time so I was sort of involved. Tracey devoured the two Ice lollies (both lemon) far too quickly so, as they won't give her a third, I had to go and get cold water for her, twice. I also had to get the concessionary parking tickets and get her new meds, these include a syringe so Trace had to be shown how to inject her self in her stomach. More holes. So it was a busy little me for a while. And then it was over, we now wait to see if the extra anti-sickness tablets help and hope she does not become neutropenic again.

Friday was Vaughans birthday. There always seems to be something happening on his birthday to just take the spotlight off him, no change this year. He has a nice selection of presents and money and is waiting for his new season Cornish Pirates top. As a special the family, including granny who is staying, went to Ocean Pearl in Bath for his birthday meal. A real treat as usual followed by a birthday cake at home. I hope he had a good day.

Finally I cannot describe to you how disappointed I am at Somersets final loss of the season, it has been their best ever and worse ever season all in one. I never want to go through this again. Roll on next season when we shall win everything.

Rugby this morning and granny should be coming. I hope none of them hurt Vaughan as they will be in real trouble if they do. I cannot be held responsible for her actions.

Chris x

Thursday, 16 September 2010

Brace yourself

Not all days are hospital days, some days are dentist days, today was one of those. Today is a day that Adam has been waiting for for 2 years, the braces came off. I had to spend the day in Bath with Adam as we had a 9:40 appointment and a 15:00 appointment at Bath orthodontics.

Firstly I took Vaughan to school and Adam wasn't ready when I got back, no surprise there. As soon as he got dressed I took a picture.


Braces on


The last morning with Ironwork top and bottom.

We raced to Bath and just got there in time. Then I had to wait. Actually it was a bit better than that as some old football friends of mine Sara and James were there with both their sons, one was having teeth done and the other was recovering from eating road after falling off his bike. I was good to talk Sara is just funny and I used to really enjoy my little constitutionals with James around the football field. We had a laugh and an update and they were gone too soon.

Well I didn't have to wait long, he soon came out, I know this is what you want to see so here it is.


Metal off


He ran outside for the picture and sprinted to the car, chewing gum 5 pulse tropical. he was to have four during the day. So we parked up in Bath ready for a boys shop. Firstly it was a cup of tea for me and a coke for Adam, without a straw, another first for 2 years, thank you cafe Nero.

Bath was full and bustling, brilliant in the sunshine. We headed off down town with presents in mind as it is Vaughans birthday tomorrow. As a "treat" I took Adam pass the Rec just so he could worship at the feet of Bath rugby. On the way there we saw David Flatman in a cafe near the ground, starstruck I had to walk pass 3 times just to make sure it was him. When we got to the ground the gates were open and we peered in. One of the players then invited us in so I took a couple of pictures in the ground. Brill


The sweet taste of coke
And then we shopped, up and down, down and up. In a shop out of a shop. Clothes shopping, book shopping electric shopping. Just enough time for a genuine Bath pasty a visit to the Apple shop then back to the dentist. It didn't take long to get the retainers which he has to sleep in each night and then home. It was a good day but now I am tired.



Dad I don't like Rugby

Still don't like it
I will end today on a sad note. Once again my beloved Somerset have been cheated of a trophy at the last moment. The elements that have been kind conspired to bite them in the bum and yet again the county championship eludes them, there's always next season.

No one really needs reminding but it is chemo tomorrow. It was nice to have a break today.

Chris x

Wednesday, 15 September 2010

Hospital time

Yet more hospital time, I think I should start keeping an RUH tally. I should make a chart of our hospital activities. The chart will consist of:
  • How many visits?
  • How many hours sat waiting?
  • Number of visits per type, blood, chemo, ill?
  • How many cups of tea, free, paid for?
  • How much money spent on parking?
  • How many attempts at getting blood, by nurses, by doctors?
  • How many wigs sighted, how many headscarves, how many commando?
  • How many nurses?
  • Does Tracey feel any better after the visit?
Today was "bloods day" in advance of"chemo day" and not to be confused with "I don't feel well" day. "Bloods day" is a day to get the blood checked out to make sure that we can go ahead with "chemo day" and hopefully not fall in to the trap of "I don't feel well day". I'm sure Trace will fill you in with details.

From my viewpoint hospital is a lovely drive over Landsdown, past the racecourse, a view of both Severn bridges over to South Wales. This is followed by a slight panic as we look for parking, I always think we are late. Then its up to 2 hour traipsing around after Trace being supportive but not in a recognisably useful way. After that we walk back to the car and do the reverse journey. At the end of it I think we have moved forward but I'm not sure by how much, sometimes I think we we have crabbed sideways.

I am sort of in a routine with it, its easy for me. I am not being pricked with sharp objects. I am not feeling sick. I am not being pumped full of obnoxious chemicals. My hair is unusually luxuriant for someone of my advanced years. Its take 5-6 pints of Stella to make me feel nauseous. My urine doesn't change colour after the hospital visit. My main problem is trying to balance work with home. It may surprise some of you but I actually do care about work. I care about getting it done, I care about hitting deadline (yes we have deadlines in the public sector), I care about not letting my colleagues down. It is hard at the moment and I welcome the help and leeway that work are giving me.

So now we wait for Traceys mum to arrive. Back to a tidy house and square meals. Adam has his braces out tomorrow, a landmark day. This will give Trace and Brenda some time on their own. Friday is Vaughans birthday, there is rising excitement. Livi has started back at college and I am not sure how much she is enjoying it. It will take time to get back in to it, perhaps she will find a sense of purpose.

As for me, well all is fine as long as my Trace is fine and when she isn't she can lean on me.

Chris x

Saturday, 11 September 2010

Just another day

One of the worse problems I have is that I don't sleep very well when Tracey is away (or I am away from her). Don't know why, must be the lack of company. Six days in hospital has meant increasing tiredness for me. This has only just started to go away with the weekend. By Monday I will be back to my bouncy self, sadly then I have to go to work.

It's been a funny few days. Tracey is back and we seem to be in a sort of routine, a good one. There is regular food and regular Tracey, both of which are good for me and the kids, work has been OK. The one big event has been the haircut. She is a very brave girl and can pull of the look with ease. She has talked about it on her blog and has the pictures on display, another brave move. I was surprised when she said lets do it, but it was the right move, strands of hair everywhere are messy and would have been a sort of disaster for her. A constant reminder of where she is. This new look is ready for regrowth whenever it will come. Also you can't see the grey.

If there are any of you who don't read her blog, this is how she now looks.


Now that's a look, the dimples are back and the smile lights the room. To embellish the look I have purchased a hat and a couple of pairs of dangly earrings which she has always liked. Unfortunately the hat did not pass the quality test so will never be seen in public, unless I wear it. The earrings however are go and may feature in future blogs.

We have had some welcome visitors today in Tracey's dad David and his wife Heather. We got Trace out to a farm shop, Hartley's at Winsley and had a Waitrose Indian for tea. We will see them again tomorrow and hope to out again.

This is only a short blog as I have had a couple of beers for the first time in a long while and am starting to feel mellow, tired. I may have to go to bed soon.

A final word, well done Somerset, another final, perhaps we will win this one.

I leave you today with some pictures of family life life that I enjoy and a picture I am particularly proud of.

Happy families at West Bay
My most scarey boat trip
Enjoying the walk on Exmoor
Sunset on Weston beach



Can I have some money daddy?




















It's always nice to indulge yourself at the end.

Chris x

Wednesday, 8 September 2010

She's back

She is home. I picked her up from hospital late this afternoon after waiting all day and now she is settled in a chair reading her book "The girl with the dragon tattoo".

I think she is in shock, nothing prepares you for how loud we are as a family, the kids were so excited I had to go and sit in the garden and make a few phone calls just to get away from the noise. And there was laughter, uncontrolable laughter as Vaughan accompanied his Ipod and the Gypsy Kings singing Volare in pigeon Spanish. I was cooking at the time and entered the room to find Tracey clutching her stomach with pain as she laughed so much.

So, for now we are back to whatever constitutes normal.

Chris x

Sunday, 5 September 2010

How are we?

My reason for starting this blog was to keep people up to date with how the family are coping with Tracey's cancer. Sometimes I go a bit off piste and indulge myself and sometimes I try and let out all the madness. Today is a bit of a madness day.

Tracey is feeling bad, the chemo is horrible, nasty, poisonous stuff. Her throat is bad, sore, painful. We all hate to see her in this way and I am sure she hates it even more. I would like to see her feeling better.

I have lots of trouble getting my head round it, the painful cure. It's a little bit like when you were young, "take your medicine, it tastes bad but it will make you better" only x 10000 worst. We will make you feel vile but you will get better. And she will, this time next year we will be wondering about the fuss. I shall make her eat one of my one pot wonders to reminder of how bad it was.

At home things are getting slightly chaotic. It's the new term and time to start ferrying the kids back and forth. This was always going to be a problem. Livi has to get to work, I know she can walk but this is not an option at 10 and 11 at night. Adam has to go to Futsal and Vaughan to rugby. Tuesday is particularly bad, Futsal 6:30 to 7:30, Rugby 7:00 to 8:30, not compatible, normally we would do it together but now other people will help. Never forget the friend network.

And then there is school and college. The taking is not too bad, but now the buses have been changed I can't just give the boys cash to get home, I think I shall have to lean on work a lot to give me a bit more leeway. Of course Brenda coming back will help a lot, but she is not back till 17th September. Lots and lots of driving for me. I have make sure I don't let it grind me down.

How are the boys and girl coping? Livi is dramatic when she needs to be, for effect she does the emotion very well and then she does something brilliant just to shock you. Vaughan is as dry as a dessert and the funniest thing on two legs, he keeps his emotions under control but every now and again you can see him giving his mum a look. Adam is still mostly our little boy and appears to have it all going over his head but sometimes you can feel his anger, he is just a little more clingy than normal.

We have been told that this may happen with each chemo or that it may be just a one off. I hope it doesn't happen again.

Anyway I have the washing to do, Chris's work is never done, sometimes it is rarely started.

Must go.

Chris x

Friday, 3 September 2010

IV

Its been an interesting few days. I am quietly sitting, watching England vs Bulgaria thinking about the last few days (England just hit their third, world beaters again and a fourth).

This week started well, Tracey had recovered from her initial chemo pain and was enjoying her mums company. Adam and I decided we would go on a bike ride on Bank holiday Monday. A cycle along the canal to the bottom of Cain hill locks in Devizes. It was a brilliant afternoon, we picked some blackberries and some sloes, I shall make sloe gin for the first time.

One thing that I have noticed is how much fitter than me is Adam. I can hardly keep up with him. I had to stop at all possible points, for an ice cream and a pint of coke. I have some pictures of him disappearing in to the distance.

Bye bye Adam and Adam has a drink
By the end of the cycle I was exhausted and Adam a bit tired. Next day I could barely walk, I even found sitting down tiring. On the same day Adam did Futsal training.

Well Brenda left to go to France. It was a good stay for her and we look forward to her coming back for the second chemo.

Its ironic that Tracey should fall ill after she left.

Anyway I was working and Tracey was looking forwards to the kids going to school for a bit of peace and quiet. All went well till Friday evening.

Tracey had not been feeling too well. Her head was a bit "muzzy", nothing would shift it. She then started shivering and began to get hot. She took her temperature and it was 38.5. May be that doesn't seem too high but we were told to report in if it was higher than 38. She took it twice more, 38.6 - 38.7. Time to ring the ward. Tracey rung up and was told that she needed to go to A&E. So she took some paracetomol, we got ready, drove in and got there about 9:00. Tracey went straight in and I parked the car and followed her. A&E was a sort of nightmare.

We had to wait a long time, no problem the Nhs is hard pressed. That didn't prepare me for what followed. I have never seen two people make such a mess of trying to get blood, by the end Tracey had 5 holes in her arm and two in her legs. Eventually a syringe of blood was taken. Whats worse about this is that she was susceptible to infection and now had 7 extra places for infection to fester.

Anyway at 2:00 we made our way to William Budd ward which is at the far end of a very large hospital. Tracey was settled and it was time for me to say goodbye. Next I had the most surreal experience, walking through RUH at 2:00 in the morning. I saw 3 people. One was sitting at a table in the main entrance as I took the chance to go to the toilet. The second was a nurse who smiled nervously at me as I walked down the corridor (I quietly slipped my serrated knife in to my back pocket, she was not the one) and the third was near the exit as I took the chance to raid a food and drink machine( my sweaty fingers slowly crept around the knife's handle, one step nearer to me and she was mine), a nurse hurried to the machine, realised she didn't have any change and walked away. Then it was home. Livi was still up with some friends. I went to bed after 3:00 and had to get up at 6:15 to get the boys to school. No work for me on Friday, too tired and Tracey might be coming out.

Most of the morning was sleeping and texting, people needed to know. I had conversations with parents and a close friend of Tracey's. All are naturally worried. there was one misunderstanding made by both Tracey's mum and me, must be an age thing. Tracey text that she was on IV antibiotics. Now to some of us that meant 4 different types. Others will realise that that means in to the vein. I suppose those of us nearer the Roman era will automatically think 4.

In the afternoon I went to visit Trace taking a few girl things for her, books and glasses etc. I was sitting down for the afternoon with Trace when we got a call from Vaughan to say there was no bus. So I had to leave and get them home. Last year there was a bus this year not, I blame the council (and the Lib Dems).

So on to the evening, Tracey has Carole visiting, an old friend from Plymouth and I went to sign Vaughan on for this years rugby.

It's late now and I want to go to bed. Blog again tomorrow.

Chris x

Hospital in a rush

Tracey had a headache last night, a sort of muzzy feeling and her temperature started to rise 38.5, 38.6, 38.7. She followed protocol, rung the cancer ward and by 9:00 we were in A&E. Tracey will, I am sure, tell you full story but bloods were taken, she is like a pin cushion, doctors should let nurses take bloods they are so much better. Her temperature started to go down and after waiting and waiting she was taken up to the William Budd ward at around 2:00. This is part of the cancer suite. So she has had an overnight stay. the blood test reveal that her neutrophils are at zero leaving her open to infection. This is apparently not uncommon for people on the first dose of this protocol. She will now have to have IV antibiotics. I am not sure how long her stay will be but she is in her own isolated room to avoid further infection. I will keep you all posted.

Well this post was going to be all about me and bike rides with Adam and Vaughan's rugby boots and Livi's new ring, but I will save that for another day.

Chris x